Who are we?
We are Marie Curie, a charity that provides support at the end of life. We do this by
providing medical care at home or in one of our hospices; and providing support to friends and families of those at the end of life and through bereavement.
We also help answer the questions people have around end of life care and campaign for change to address problems in end of life care.
What types of data do we collect?
At Marie Curie we collect personal data, this is information that could be used to identify you. At its simplest this could be just your name and address; or it could include a telephone number, email address, a picture or recording of you.
We might be supporting you and there are things that our team need to know to help them to do that. This could be quite sensitive and personal information about you and how you are doing.
Where do we get your personal data from and what do we do with it?
Most of the data we will get from you. If you are under 13 your parent, carer or legal guardian will give it to us on your behalf.
If you are supporting us with money or helping raise money for us, we will get all the information from you. We don't buy lists of names from anyone else and only store details of what you provide us.
If we are supporting you, we may get information from organisations or professionals such as your doctor. They will have checked they can legally share that with us, for your care, and we will have agreements in place with them to receive this.
So:
- You might get in touch with us to help raise money for us to deliver our services.
- You might need support yourself and maybe someone has contacted us for you.
- We may ask for information from you to help us understand how to help people like you better in the future.
- When you are in touch with us, we will sometimes ask for your personal information. Personal information means things like your name, age, where you live and how we can contact you. It can also include sensitive information related to how you are feeling.
- If you are under 13, we will ask you parent, carer or legal guardian to give us information about you on your behalf. We tell them how we keep your information safe in our other Privacy notice – it's a bit longer than this one! They can ask to see any of that information, any time.
If you are aged 13–18 then you can give us permission (or 'consent') to record some data about you depending on what we are doing and hold on to it for as long as we need to.
So, if you are raising money then you might want to get emails from us about fundraising events, or you might want to do something to raise money. We'd need to keep in touch with you about that.
If you are getting care and support, then a member of our team will sit down with you and explain all of this and check that you agree; that you know what your rights are; and that you understand what we do with your personal information – it is yours after all!
Everyone directly involved with supporting you is trained in safeguarding, which means that we know how to keep you safe and that includes how we keep your information safe. We don't share unless you tell us we can. Sometimes we cannot keep information confidential as we need to make sure children and young people are safe. If you tell us something about yourself or another person being hurt or at risk of being hurt, we might need to tell someone who can help (such as a social worker, parent or teacher). We will tell you who we have shared information with and why, unless we do not think it is safe to do so.
How long do we keep your data for?
We have thought a lot about how long we should hold on to personal data. We believe it is only as long as you would consider reasonable, or where we must because of the law. We have a list of how long we keep all information and what we do with it (delete or archive) when its time is up! We keep this very safe on our systems, just like you would expect us to.
Your rights
You have all the same 'rights' regarding your personal information as adults do. There are 12 rights, and you can see them here.
What does some of that mean in reality:
- You have the right to contact us and ask us about the information we store about you, and we must provide it to you.
- You have the right to ask us to change the information (for example where there has been a mistake) or remove some, or all, or your information (for example remove you from a mailing list).
- There may be some reasons why we cannot do as you wish (there may be legal or other reasons we need to keep data) but if that is the case, we will explain this to you.
Get in touch
If you want to know more about the personal information we have of yours, take a look at our general Privacy Notice.
If you want to raise a question with us, or have any feedback for us around how we use your data please do drop us a line. You can write to our Data Protection Officer, Ruth at DPO@MarieCurie.org.uk.
If you are unhappy with our response, you also have the right to complain to the Information Commissioners Office. Please let us try and solve the problem first.
