Marie Curie Blog

How lived experience helped set new research priorities

In partnership with many other organisations including the James Lind Alliance (JLA), Marie Curie led the creation of priorities to guide palliative and end of life care research in 2015. It was the first time people experiencing or affected by terminal illness identified and ranked research priorities on a large scale. Since then, these priorities have guided research funding from Marie Curie, our partners, and others. 10 years on, we’ve refreshed the list.

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Welcome to the blog

How lived experience helped set new research priorities

Browse by topic

“We can support you with feelings of grief before the death of a loved one”

£4 of every £5 is spent on hospital care at end of life

PODCAST: On the Marie Curie Couch with Roderick Williams MBE

“I’m making a difference when it really matters”

“We all have limited time in our lives - I wasn't going to waste mine.”

“We can help if grief persists for a long time or becomes more intense”

End of life care is in crisis, but we can still fulfill our vision

“Those difficult conversations can make all the difference”

“The walk is both my grieving process and a tribute to Angela”

Listen: Music for the End, a Marie Curie podcast with Edith Bowman

“We treat our patients with dignity and respect from the first moment”

“It’s the final days of someone’s life. They don’t deserve to die in pain.”

“Marie Curie gave Mum and Dad the dignity they deserved”

The “cost of dying crisis” can’t be ignored any longer

Our new report shows too few people are getting excellent end of life care

How do you give someone a good end of life, whatever the illness?

Innovation in hospice care needs proper government funding

Real stories of living with a terminal illness

“Marie Curie keeps me positive about the time I have left”

“The hospice arranged our perfect wedding”

“I promised I’d be there until the end. I kept that promise.”

“I’m proud to be a Marie Curie volunteer – we give the love back”

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